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Alec Gardner, born April of 2001 was diagnosed at two weeks old as one of the few children affected by this extremely rare condition. He is our son. This is his story.

      Alec on a happy day


Here are some other links for support and information on Chromosome 22 Ring.

Chromosome 22 Central

National Organization for Rare Disorders

Glycogen Storage Disease-Type 0

Chromosome Deletion Outreach, Inc.

John Tracy Clinic




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