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Alec Gardner, born April of 2001 was diagnosed at two weeks old as one of the few children affected by this extremely rare condition. He is our son. This is his story.
Here are some other links for support and information on Chromosome 22 Ring.
Chromosome 22 Central
National Organization for Rare Disorders
Glycogen Storage Disease-Type 0
Chromosome Deletion Outreach, Inc.
John Tracy Clinic
Meet Alec's Full Time Caregiver
Are you a Harry Potter or Wizarding World Fan?
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